The Spina Bifida Association of New England was founded in 1971 to improve the lives of people living with Spina Bifida and their families. SBAGNE provides educational and social events for parents of young children, tweens, teens, youth, and young adults, provide outreach to medical offices and clinics, participates in public awareness events, and offers financial benefits to organization constituents. SBAGNE serves individuals and families living with Spina Bifida in Massachusetts, Maine, New Hampshire, and Vermont.

SBAGNE boasts an active community of constituents like Lena who was able to attend Kids Camp at the biennial National Spina Bifida Association Conference through SBAGNE’s support.

Lena writes: “In kids camp, I was grouped with other teenagers my age who also have spina bifida for a few days full of fun activities, informational sessions, and social interactions with other kids that I might not ever meet otherwise. Traveling to new places to meet people with similar experiences to me is always a positive thing. Thank you SBAGNE! This was a fantastic experience!”

SBAGNE hosts a variety of events, including holiday parties in Maine and Massachusetts, Paint Nites, BEST and BLING weekends for youth.

This is SBAGNE’s first year participating in the #GivingTuesday movement.